Nebraska RARE is dedicated to empowering families impacted by rare disease through advocacy, community connections, and education. We strive to increase awareness, partner with healthcare organizations and providers, and communities to ensure every person with a rare diagnosis is understood, supported, and valued.
We amplify the voices of rare disease families in Nebraska's legislature and healthcare system, working to improve policies, access to care, and support systems across our state.
We foster connections among families, build supportive networks, and ensure that every person with a rare diagnosis is welcomed and valued in their community.
We provide resources and information to families, healthcare providers, educators, and communities to increase understanding of rare diseases and their impact.